Prader-Willi syndrome

posted on: Wednesday, July 2, 2008


What is your relationship with food? What if it was like this?

9 comments:

  1. That is so unbelievably sad. Makes me grateful!

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  2. Wow, That is so sad. I don't know If I could live like that. I thought it was bad enough when I was pregnate, being so hungry but my stomach was so full. I think this would be sooo hard to deal with. No way I could have locks on my doors to a kitchen! I might go insane. I need to learn to be more greatful.

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  3. Thank you for posting this on your blog. My 5 year old son has Prader-Willi syndrome. Our daily lives are consumed with managing his many needs. No one can truly understand what it's like to have a child with PWS unless they are living this life. It is very difficult. Food is everywhere. Thanks for helping to raise awareness.

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  4. plantgirl14,
    thank you so much or your comment! This is fascinating and I hope to learn more about it.

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  5. Hi- I guess that means Jesse & Bekah will be back in town-sweet. We were planning on going to see Jack. We'll have to meet up. I was thinking about bringing Monet because he's so mellow and we can hang out on our blanket on the lawn at that ampitheater. we'll see. Do you guys still have the 808 cell phone #? I'll give you a call when it gets closer.

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  6. I have never heard of PWS, thanks for the info Da!

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  7. My daughter, 5 months old, has Prader-Willi Syndrome. I am a foodie to--or was. As you can imagine it is very, very difficult for us to see what lies ahead but I appreciate you including this on your page. It is very well done, hope you don't mind but I'm going to add it to my blog too. web.me.com/jenrink

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  8. I work in a home with someone that has PWS... where can I find a PWS cookbook???

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  9. Ambino, I'm sorry but I'm not sure? I'm sure you've tried google or Amazon?I don't know what else to tell you, sorry

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